In This Family Nobody Fights Alone Logo Png
Ryan Humphrey's Memorial Service Video
Commemoration of a Beautiful Life
Please bring together us in jubilant Ryan Humphrey's life. The memorial will be held in the auditorium of Athens High School in Troy, MI at 1:00pm. Park in the student lot and enter auditorium doors. Low-cal snacks and beverages will be served after the memorial.
Nosotros know that many people have been impacted past Ryan and his journey. This will be a public commemoration of his life to allow anybody who was touched by Ryan to participate in his memorial.
Nosotros would honey all guests to annotate below (or ship in an email) with one word that describes or reminds you of Ryan.
Please RSVP past electronic mail to Nicole (Confidentjoy@gmail.com) or on the Facebook Effect so we can plan appropriately for everyone who is able to exist in that location.
In lieu of gifts or flowers, please consider donating to Angiosarcoma Awareness (website is www.cureASC.org).
Any cards, gifts or flowers should be sent to Geri Kopiczko: 9615 Bartel, Columbus, MI 48063
Link to obituary:
http://g.modetzfuneralhomes.com/obituaries/events?obituaryId=3193983
#FUAS #LiveLikeRyan
Join the Facebook Event
See You Soon
It'south not cheerio, it's see yous soon.
In that location will be a private family funeral this week. A larger public memorial service is existence planned for this weekend (or the next) for whatever and ALL who desire to gather to remember, celebrate and grieve, the shining calorie-free that was Ryan.
Details to be posted.
Cheers so much for the outpouring of dear and prayers and support and testimonials.
We Love You All.
Update 08/01/2018
Visitors, cards and prayers are still welcome; depending on Ryan's stamina.
Give me a call if you wish to visit 517-242-3434
Home is near 32 mile & Gratiot near Richmond
9615 Bartel Rd, Columbus MI 48063.
July 22, 2018
Update from Ryan's Mom:
My Ryan has been a strong and stubborn male child his unabridged life. We are and so much alike and often butted our heads together. Today, as a man, he is no dissimilar. Yesterday he moved over, patted the bed and invited mom to lay down with him for some hugs. This is so hard. But we are learning his non-exact cues.
Ryan'due south body is so young and resilient, he continues to fight this disease with super human being strength. He has his good days and bad days. He is enlightened less and less, and sleeps more than and more. Loads of people have visited, reminiscing and laughing. But the overload of stimuli is very taxing and difficult for Ryan to process. However, Information technology's the increased hurting (which he even now denies) that causes his distress. For the most part, we are able to interpret the signs by his behavior and actions. His restlessness, his agitation, his frustration and the simple furrow on his forehead. He had a really bad day Fri, repositioning himself constantly; up and downwardly out of bed. Standing within my embrace because his legs are not cooperating with his brain. Sitting with the support of his sis. Laying down with the comfort of his fathers warm hand. Andrea and the boys are coping every bit best they can. The boys visit when they want, but they are frightened with Ryan's unpredictable behavior. Andrea has an enormous weight and grief on her shoulders. Our family (which is very large) provide constant dear and back up to them both. Someone is with Ryan at all times, 24/seven. Yesterday, we once again got his pain under command. And He is at present in a well deserved and restful deep sleep.
It is so very hard to sentry a once brilliant and tenacious listen not able to role in the quick witted, educated and humorous manner as we knew him. He would have hated this. So actually at that place is no alter beyond keeping him comfortable and waiting for God to take him dwelling. We volition update when nosotros tin can. Heartfelt gratitude for the outpouring of love, back up and prayers.
July 12, 2018
A mail from Ryan's mother:
Ryan has inspirationally battled and waged against Angiosarcoma for a nigh decade, overcoming again and again equally Angiosarcoma pushed back. The most recent scans showed the recent mass was aggressively growing and a new lesion found deeper. He has also experienced seizures the past three days that exercise not take a clear cause as well a torso boxing worn and weary.
One of the things not oftentimes discussed is the daily battle of pain acquired past fighting cancer so hard. Odd things. Unexpected things. Ryan's daily struggle was his back, and has been for almost two years. His spine has been scanned and checked only the origin never figured out. It recently increased to condign intense, and something he just wrestled with silently. The pain is now astringent plenty to restrict movement, slumber and perchance be a contributing cause of the seizures.
A Craniotomy would not fix this hurting, reach the deeper lesion and would not modify the relentless assailment of the most recent masses. The gift of hospice, however, gives the condolement and relief he needs, and deserves, after such a long journey. At this fourth dimension he is in and out of awareness however when he is aware he brings a chuckle to those sitting near him with jokes and continued reassurance of beloved – because that's who Ryan is. We are grateful for the souvenir of so many extra years with him, then thankful nosotros can surround him with love in return.
Return to Houston
It's that joyous time again to visit MD Anderson again. Let's hope and pray the edema inside my left brain has reduced.
As a epitomize, the team and I ultimately decided, after many consults and point of views, that it would exist in my all-time interest to do a short interval follow-upward scan without taking whatsoever treatment medications equally opposed to going on very low dose Avastin. Since I am asymptomatic for the nigh office, we felt it would do more impairment than good had I went with the Avastin to take care of the edema.
At the moment, I do not have an appointment with neurosurgery. Both Dr. Lang and Cheryl are out of the office this unabridged calendar week. I've emailed them both as well as the department every bit well as trying to contact the scheduler through myMDAnderson to no avail. I'll keep trying just because that's what I do! 🙂
Please pray for bully results, NO new tumors (I have none that are active at the moment!), and the power to control and manage the ongoing stress/anxiety.
Houston Visit
This evening Ryan volition begin his "visit" in Houston. He volition exist having an MRI and PET scan followed by visits with all iii of his doctors. This is his first follow-upward date following the high dose of steroids his medical team prescribed due to the large edema that presented on his last scans which is located within his left temporal region; above, below and beside the former and known lesion.
Please join us all and pray for clear scans and nix just the gift of wonderful news for Ryan as he continues this journey. In that location is strength in numbers and nearly definitely power in prayer.
Sending love and blessing to y'all all during the holiday season.
Results Update
Adept evening! Nosotros are on the airplane and heading home shortly from Houston to Detroit then to bulldoze from Detroit to 1000 Ledge! With all said and done, I should be making information technology dwelling house driving around 2am! Home sweet dwelling house!
Information technology's a little likewise wordy to explicate everything to you right now. By and large, this is considering Spirit doesn't accept Cyberspace on their airplanes or else I would practice it on the flight dwelling!
It'due south not legion/live cancer severity as there are currently no active lesions using our best observance from everybody. My trunk and brain all seem to be clear of active legions.
Withal, I do take a serious and somewhat unsafe upshot that needs to be addressed and taken action now. I have a large edema within my left temporal region located higher up, below and beside the old and known lesion. This is the already treated area very close to the upper left ventricle expanse. With the blocking of this ventricle, the expanse grows because the liquid has nowhere to go since it tin't pass from lateral ventricle to the third ventricle.
This is a very bad and scary state of affairs. I am going to take steroids to help the edema shrink every bit this is really causing a midline shift currently which is effecting the voice communication heart causing a random and frustrating situation where I cannot remember certain words. I can remember definitions and explanations, simply I tin can non for the life of me remember certain words nowhere and randomly.
Overall, it was a very long 3 days with many, many discussions with a lot of educational and assuming doctors and nurses. We have plans to do the steroids while however taking keytruda for now every bit it seems to exist working very well. We will proceed a very close center on all treatment and any symptoms getting better or worse especially in the encephalon.
Delight pray the Kensington continues to work AND the steroids volition cause things to at-home down so ventricle liquid can move freely.
Our airplane is taking off soon! Sorry I cannot get into depth correct now, post medical images or medical reports, simply I promise to exercise so in a twenty-four hours or two when I am able to find time.
Delight continue to keep us in your prayers. We love you all so very much, and thanks for helping me love my life, my family unit and my friends.
Accept an amazing evening.
3-Days in Houston
Skilful morning, and a very happy Mon! Thank you for sharing your lives. Information technology is astonishing to be a small role of each others lives even if information technology is through pictures or messages every once in awhile.
We but landed in Houston. Unfortunately, my current appointments at Physician Anderson can not be smaller than a iii solar day trip. I must get my PET scan and see my sarcoma oncologist, Dr Ravi, since I am withal taking keytruda. I must also get my MRI and come across my neurosurgeon, Dr Lang, equally well as my radiation oncologist, Dr Li, to go on chirapsia this disease.
With that said and in summary, I have a long 3 days with a total of 2 images (PET scan and MRI) followed by 3 consults with Dr Ravi, Dr Lang and Dr Li.
If you have a moment, please say a prayer for our family that it is His will once more to brand information technology through this disease. It'due south been amazing the help God has listened to us and our prayers. I am certainly non always worthy, but I am very blessed and grateful for the miracles that continue to happen!
I miss home, just this will, hopefully, be iii days if amazing news. Time will tell, but I do feel good currently with this regimen.
I will make information technology dwelling in fourth dimension to make information technology to the briefing for Landons school every bit well as both boys high school Halloween parties. We are so very happy and grateful that appointments seem to allow us to honey life and everything that is happening at home.
We love y'all and everything you go along to due for u.s.. You're perfect in our lives and all you come into contact with. Thank you for taking time, sharing your lives, and being a role of ours.
PET scan today. Dr Ravi and MRI tomorrow. Lastly, Dr Lang and Dr Li on Wednesday followed by heading dwelling and arriving late on Wednesday evening!
Have an amazing twenty-four hour period! I'll update when I get results and have time. We dear you.
Removing Port
Good afternoon to all of you amazing friends and family. Today is an absolutely cute fall 24-hour interval. It helps relax me and proceed me calm. This is an important statement because life tin become very busy sometimes. I wait forwards to the life moments and situations that apprehensive me and allow me to tiresome down. In that location is nothing more beautiful than enjoying the current moment sometimes. Today is one of those days.
🙂
Lastly and every bit of import, today is the start of round 3 of keytruda (round 77 total). My blood piece of work came back bang-up which is one of the absolutely amazing things nearly this handling. Information technology doesn't attack your cell counts!! As I write this, I am currently getting infused.
After this round, nosotros head to Houston from Oct 24-26 for a MRI, PET scan, and consults with Dr Ravi, Dr Lang, and Dr Li. Any prayers yous could spare would be amazing, and nosotros would be forever grateful.
We honey y'all all so very much. Cheers for loving usa so much and getting the states this far on this journeying. We will shell this. Nosotros will live our beautiful lives for a long time…together.
Accept an amazing 24-hour interval, everyone.
Treatment Update
September 20, 2016
Good afternoon and a beautiful one at that! I hope this message finds your lives full of dearest and happiness. I truly promise that no affair what life throws your style that you are able to notice the skillful and however smile. Life is endurable for the most part if you can enjoy it through trials and tribulations. Make memories and help another. We are all in this together.
I don't often wait back anymore. I don't recollect about what I've been through for several reasons. Beginning and foremost, it'due south a lot to recall. It'south the main reason I brought my personal medical tape to electronic record keeping. A quick search can observe almost anything I need and so I don't need to clog what brains cells I accept with all of those results and consults. Second and most important, the past is the past. There is something to be said most living life one solar day at a time. This applies to most everything. If life is throwing besides much at us for a moment, we truly merely have to worry about today, physically. The past is over and tomorrow is non here still.
Still on the rare instant I do look back, it is unremarkably a milestone. Yesterday was such a solar day. Rewind 7 years ago yesterday I was undergoing my very commencement surgery e'er against this disease. 7 years ago I was coughing up blood, had a plethora of tests and scans done, simply there was no consensus on what was going on. The one affair the entire team agreed upon was that information technology was bleeding and needed to come out.
Fast forward to today, I've now had 76 rounds of chemo (including today), two lung surgeries with the removal of my left lung, five gammaknife noninvasive brain surgeries, and 1 craniotomy. We also know that it is angiosarcoma, and it is a force to be reckoned with. With your help, nosotros are currently, once again, without visible disease on the macroscopic scan (read on any imaging techniques available today).
What.A.Ride.
I've now seen my youngest son off to preschool when I didn't think I would make information technology to my oldest son's first day of preschool. I've made countless memories with my beautiful family unit. Thanks be to God, this has all happened while fighting this devil of a illness. We are blest, and I volition never forget that fact. We are at His mercy, always, and for that, I am forever grateful.
With that said and every bit I eluded to in a higher place, I am currently undergoing my 2nd keytruda immunotherapy treatment (74th treatment over). So far it has been night and day compared to chemotherapy. There are no premedications to take prior to treatment, no prescriptions to fill for after treatment, and I feel completely fine, all things considered. It simply needs to work, and I promise and pray that information technology is.
We beloved you all then very much. Have an astonishing day. 🙂
Update & the Futurity
Good evening, and I hope all of you are doing amazing in your beautiful lives. I cannot tell you how sorry and embarrassed I am to not have done an update (or any mail service) for a long fourth dimension.
Nosotros are doing well, and nosotros could even classify information technology as doing very well, thanks be to God. I'll do a much longer and detailed update another time, but I didn't want to put off writing any longer.
I went to Houston last calendar week (ii.5 day marathon) which in the end afterwards all was planned turned into a PET scan, MRI, blood piece of work, chest x-ray, consults with Dr. Lang, Dr Li., and Dr. Ravi, and finally, my first handling of the immunotherapy drug, Keytruda (pembrolizumab).
We are very happy to report that the MRI came dorsum stable with no new lesions!! As for the PET scan, there are no visible lesions and NO new lesions. Praise God! Both reports are attached to this update. It's been a very, very long journey, and nosotros are here because of your dear, prayers, guidance, and God's unending love and mercy. We are here presenting with not 1 visible lesion on the scans. I am careful not to telephone call information technology NED. We can say I am NED on the macroscopic scale. This leads into the fact as to why I am starting immunotherapy.
Praise God that my insurance canonical it's use even though it's off label (not FDA approved for angiosarcoma). v years agone whatever insurance wouldn't have idea about information technology for a 2d. It costs $21k per dose, and each dose is only 50mL. It would have been denied. However, times have changed. My medical team sent in some very disarming clinical data. Lastly, when I followed upward with my insurance contact who approved it, she said she doesn't want me to go without this medicine. All celebrity to God. Nosotros have a very blessed life! Never always give upwards!
Nosotros love you all, and thank you from the lesser of our hearts for standing to pray for us regardless of how often you hear from me. There is force in numbers and virtually definitely ability in prayer.
We honey you.
(click on the below images to enlarge)
Continued Improvement. No Significant Activity.
I am sincerely sorry nigh the filibuster in getting this message out. Truth be told, my local oncologist called me late in day on Thursday to give me the news. It was the news nosotros had hoped and prayed for, but I wanted to accept the physical report in forepart of me but to make sure. Past precedence has taught me to exercise this actress step. Fortunately, the report read fifty-fifty amend. When the words and phrases include "continued improvement", "barely discernible" (read barely visible/detectable), and "no pregnant activity" are used to describe 2 active angiosarcoma lung lesions, you know God is on your side confronting a deadly affliction. We are beyond ecstatic well-nigh the double dose of great news between both the MRI and PET scan results. Adjacent scans are at the finish of summer so it's about time nosotros get to have an almost "normal" summer! It'southward been awhile!
Fortunately, I felt great physically yesterday and so I spent the entire twenty-four hours running around boondocks and doing work exterior around the house. It's a rarity to feel that keen, but I believe the culmination of it being my off calendar week from chemo with bang-up scan news allowed the stars to align for both a concrete and mental recovery at the same time. Fourth dimension got away from me while doing all of this yesterday which is why I am just getting this out now.
I am always very hesitant and nervous nearly having both of these scans inside a week of each other. Since my first encephalon lesion, nosotros have not had both scans come back clean on the aforementioned scan cycle. If 1 was articulate, the other virtually inevitably showed something. For once, we can celebrate with being in dismay at the same fourth dimension. For once, we are ahead on all fronts. For once, we can breathe a sigh of relief knowing that our prayers are answered in the exact fashion we take been praying. Prayers are always answered, but they aren't always answered on our fourth dimension or in the exact way in which we prayed and what we prayed for.
I immediately got into looking frontwards mode and texted Dr. Ravi. He called, we shared a moment of congratulations for each other, and we discussed our programme going forward. As I mentioned earlier, nosotros want to be more proactive than reactive especially now. With that said, nosotros are setting into motility getting Keytruda (immunotherapy) paid for so I can start taking it. It near likely will take a few weeks and so I will start round 74 on Monday and just finish out the round since they are 3 weeks long. Hopefully and God willing, I will be starting Keytruda every bit a standalone treatment post-obit this circular of chemo.
Thank you lot, anybody, for all of the prayers, messages, and beloved. We wouldn't be here without you. Equally Dr. Ravi stated, a typical angiosarcoma encephalon metastasis patient is given eight-10 weeks. I won't make it to how I feel about statistics, only allow's just say we take diddled and continue to blow those statistics out of the water!! Cheers be to God, we are currently about 130 weeks and counting since my first brain lesion! Information technology will exist 7 years this August since my first symptom in all of this. Nosotros are blessed beyond comprehension!
Have an amazing and Safety holiday weekend. Nosotros beloved you all!
Prayers Answered
It was a great twenty-four hours with regards to the brain. All previously treated lesions are stable, and there are NO new lesions! Praise God. Rescan in 2 months for my MRI.
Thanks for keeping us in your prayers every bit e'er. We just need to become through side by side Thursdays PET scan with unremarkable results. If and so, I MAY just take a "normal" summer to enjoy (chemo doesn't count….with 73 rounds and going, it's just a formality at this point!).
We dear you all and so very much. I'm a very wearied, just smile, man right now!
Circular 73 of Chemo & Re-Staging Scans
Tuesday, June 21, 2016
The day is going rather smoothly, and everything is happening relatively on schedule. I'chiliad all checked in for my MRI. Iv has been started with no issues. Currently, I'm waiting to exist called for the actual MRI. It should only be a matter of fourth dimension. 🙂
Nosotros'll find out the results some time around 1pm fundamental time tomorrow.
Thank you for all of the astonishing notes and letters of love and comfort. Y'all're an incredible group of people who constantly surround my family and me with promise, prayers and words of wisdom.
We love yous all so very much. Slumber well this night, and hug those closest to you. Never miss an opportunity to share your feelings.
Have an amazing evening!
Mon, June 20, 2016
Good morning, and a very happy and beautiful Monday to all of you. I hope this message catches you in a bang-up mood with a grin on your face up just thinking about how blessed you truly are. It'south what I do often. Nosotros had a nigh perfect weekend with astonishing weather. Fun in the sun on a lake on Friday, celebrating the beautiful and amazing wedding ceremony of my cousin and his now beautiful wife, and a nice, relaxing father's doing what the day is for – playing with my family. It was a very memorable weekend.
My blood counts came back strong so it's time to ring in part two of circular 73 of chemo. The final part until ALL of my re-staging scans. I experience great so let'southward continue to crush this affair dorsum.
CathFlo worked like a charm on my lateral access of my dual port. The medial admission is all the same being stubborn, simply nosotros only need ane to work to go chemo without using peripheral veins. All the same, nosotros do theorize that since we started out with 2.5mL of t-PA (drug used to break up a clot) and had 0.0mL when all was said and done with the medial port, it had to get somewhere. Perchance the drug is just sitting in at that place (or sat in there since the half life is pretty short) and eating abroad at whatever is blocking the catheter.
Long story short, we accept on side of the port that works and so it's still a success!
If we could inquire for a few moments of time for a few extra prayers these upcoming weeks, nosotros would be forever grateful. It's been awhile since I take run the medical gauntlet with all of my scans and then close together. Stress is an understatement!
Today is chemo. Tomorrow morn I leave for Houston and render habitation Wednesday effectually midnight. I take my MRI late tomorrow followed by consultations with radiation oncology and neurosurgery to determine the efficacy of my most recent gammaknife and to determine more lesions, if any. Later that dog and pony show is finished, I have my follow-up PET scan on June 30 locally to determine the status of my lung lesions that, thanks exist to God, we seem to have a stiff counterattack against it that seems to exist beating expectations!!!
Have an incredible day, and tell those who you lot agree very dear to your heart, every bit I hold all of you, how much they mean to you. Words of pity, sincerity, and love go a very long way for a person. It costs nada. 😉
We love you all and then very much, and we could not do this without y'all. Ever. Nor would we want to.
PET Scan v/eighteen/2016
Thank you for all of your messages and notes. It's been decorated here lately and so I sincerely apologize for the lapse in Facebook posts. I know you'll say information technology's okay, but from my point of view, I built this platform surrounding our journey to always brand certain I treat you all like honey family. Information technology's of import to me, and I recall almost all of you often.
We had an admittedly amazing weekend celebrating our two astonishing boys birthdays. Thanks and so much to all who came out to their dual birthday party. They had so much fun at the astonishing shark themed party that somehow my incredible wife put together all on her own. She is truly an affections! I am a blessed husband and father.
I apologize for the brusk detect, only if you have a few seconds to spare, delight pray for astonishing PET scan results this morning. The scan prep began at 830am.
Delight pray for a fight we tin can win. Delight pray that God's mercy keeps u.s.a. as a apprehensive family of iv for many, many years to come up on this beautiful planet.
Just to clarify, we have been fighting this disease in two different fronts for some time now. Unfortunately, we've only had to bargain with ane or the other at any moment on this journey.
In other words, we take to deal with it in my key nervous organisation (brain) every bit well as systemic (lungs). MRIs are follow-ups in the brain to restage my progress. PET scans are follow-ups in the residue of the body.
Nosotros live but one day at a time. Past diligently adhering to this oft forgotten philosophy, I take enjoyed this beautiful life, every single solar day, what will be 7 years this August. God is great, and it is amazing amount of years against this disease.
I'll go on fighting with all that I have as long as we have you all on this journey with us picking us up when life tries to tear usa down.
We fight on. Forever.
We love you all so very much. Cheers, each and every single one of you, for taking the time to love u.s.a., share our story, learn from our journey, and for living your lives.
Treatment Tomorrow (Weds)
A very good and beautiful morning to all of you lot!! Thank you for all of the warm and heartfelt messages you always send just specially with my most recent update virtually gammaknife #five.
The terminal 24 hours have been chaotic and a whirlwind, and I had no office in causing information technology!
Yesterday morning, I had all travel and accommodations planned for gammaknife this Wednesday until the radiology team chosen to inform me that in that location was no availability this calendar week. They weren't sure why neurosurgery gave me the incorrect date. They scheduled it for side by side Midweek, May 11. I cancelled and rescheduled all of my plans for the following week.
Fast forward to 6pm yesterday, I get a telephone call from radiology that there was a counterfoil this Midweek. They questioned if I could make it and go insurance blessing. I have never backed down to a challenge, and this wasn't going to be the first time. I had all the phone numbers needed (although at that time my insurance company was closed).
I had radiology email me the request for authority forms, and I would call my insurance manager this forenoon first matter, make full her in, and e-mail her the forms. I ready an alarm so I wouldn't forget!
Equally far as travel, thankfully flights are open since I fly standby. I rechecked myself into the same flight, and we didn't lose our spots in the standby list, thanks be to God.
Every bit far as hotel and auto, that'south some other issue entirely! Commonly not an issue, but there is an oil and gas convention at the NRG stadium which is right next to MDA. Everything, and I mean everything, is booked up. No rental cars…no hotels… I concluded up going through some third political party website for hotels that said in that location was a hotel opening. Whether that's truthful or not doesn't matter at present, I have a paid receipt with a confirmation number!
Equally for a car, we will have the shuttle to and from the airport.
It was a very long and exhausting twenty-four hours yesterday, to say the least. I had my mind, body and spirit all ready for this Midweek. Then they said it's non available. I was able to catch my breath. Then they chosen and said there is an opening. I was at present running around like a mad human now when just 8 hours prior everything was scheduled as far equally travel and we were packed! Heed you nosotros were out shopping and getting set to consume dinner out when they called.
With all that said, we are at the airport in Detroit set to fly to Houston via Dallas. Insurance has been called and approving is done. Nosotros have a room over again for the adjacent two nights. Nosotros have transportation again. Phew!!! Exhale, Ryan, breath….
I was talking to a neighbor yesterday near my circus of events. I joked about how I'll trounce this disease, no probelm. It's the stress and feet that the backside the scenes people cause me that volition do me in!! I really can empathize and experience so very sad for the elderly and uninformed that have to do this crap. This is a lot of work for a patient to do. Sometimes I think they forget that I am the patient. I should remind them of the 5 brain surgeries (soon to be half-dozen), two lung surgeries, and 71 rounds of chemo…..they probably wouldn't care. I'k only a number to the support staff! Lol
Thanks be a God this all worked out. I've learned a lot in the past 7 years of fighting, and it really is amazing the things we can practise in such short fourth dimension.
One concluding Godsend, it is very foggy in Detroit right now. It is beneath landing minimums, but just inside takeoff minimums. A 920am flight would normally be a plow flight rather than a commencement flight. Even so, our flight is a start flight meaning the plane is from the dark before besides as the coiffure!! Permit's merely say the passengers going to another destination nigh likely won't be leaving soon since there airplane is currently in a belongings pattern unable to land. All the same, we are currently boarded and ready to depart! smiling emoticon
Phew! Ramble session is over for you lot all now. Take an astonishing Tuesday!! We beloved you all, and thank you for all of your love and prayers. Houston, here nosotros come up!!
Gamma Knife #5
I sincerely repent for the delay in getting this bulletin and update out. Information technology'southward been a crazy few days, only that is no excuse. I have built a platform where I like to keep everyone updated, informed and in the know considering I get as much out of it as you do.
With that said, one of the downfalls of having the MRI early on morn with consults the aforementioned mean solar day is that the scan will most likely non be read and finalized. Unfortunately, this was the case. I'chiliad a factual and detail-oriented person, and I similar to have all the pieces (or most if possible) earlier giving an update. This saves fourth dimension and energy on both ends, and I promise information technology avoids missteps and incorrect information. Information technology can exist very easy to embellish emotionally if all the facts aren't in that location. I try my best to avoid giving emotionally charged updates, and if I practise, it'due south only the positive parts and how to battle on.
One time again, nosotros didn't go the news nosotros had hope for, just we as well didn't get overly devastating news either. Unfortunately, a new spot has developed in my encephalon. It is about 1.8cm past 3.0 cm located within my left hippocampus. As well this spot, all previously treated lesions are stable, and no additional spots were remarked upon. I am asymptomatic which is e'er a very big approving.
This lesion is more cardinal than whatsoever previous lesion, but according to Dr. Li, there is enough clearance between it and the brain stem. With that in heed, it also fits within the size parameters for gammaknife. As you may have guessed by at present, nosotros are going in for gammaknife #5.
Thanks be to God, nosotros have assembled a tiptop-notch and fast interim medical team. I have to practise my part on my terminate with insurance, travel, etc, but together we are able to get things scheduled quickly. Gammaknife is scheduled for this Wed, May iv. All of my travel has been bundled. We are ready to get information technology washed!
Every bit a side annotation, I take to stop chemo momentarily because 1 of the drugs (Gemcitabine) is reactive with radiation. We fully plan on starting up chemo once I get the okay. That would finish round 71, and it would be time for another PET scan. Talk about an emotional and stressful month!
I'yard living and making memories, and it is for that reason that I can do this and the hardships are well worth it. No matter what we are going through and what trials and tribulations come our way, we can only live one day at time. When tough times autumn upon us, shorten y'all window and don't remember besides far ahead. Focus on the job at hand and take total advantage of this current and beautiful twenty-four hours.
I texted a few people once we had most of the facts in the hopes that it would slowly make it's way to people'south hearts and minds. My sis and I discussed briefly about my emotions and how could I mayhap take whatsoever energy left to convey my feelings. My answer to her was something I've learned and a skill I've acquired over the years.
Truth be told, I haven't cried in a very long time. We've been through a lot, and we proceed to endure and conquer. I too don't get excited with adept new. I've learned the best thing to do is stay in the eye. Don't ride the roller coaster that tin can so easily consume ones listen. Figure out a program. Pick upwards the pieces, if any. Movement forward and fight.
We've been hither before. We will beat it dorsum again.
If nosotros could steal a few moments of your time, please pray for our family unit. Delight pray for slice of listen. Please pray that gammaknife is beyond successful again with no lasting side effects. Delight pray for God's healing paw to live a long life with the cute family He has given me. Looking forrad, delight pray the chemo is working and that my ensuing PET scan shows positive results for a disease that is losing it's battle.
Thank you for always loving us, caring for us, and carrying our burdens when the road gets rough.
We love you all so very much.
PET scan results & update
Good morning time, and a very happy Mon to all of y'all! I hope this message finds you doing very well. I promise and pray your lives are full of love, purpose and memories. We only get ane risk through this life. Make it count, and always know you accept the ability to change something that isn't bringing you joy and happiness.
I repent for the filibuster in getting the PET browse results from final Thursday to yous all. Nosotros had a very busy weekend starting with our much anticipated family fun mean solar day to Legoland, Body of water Life Aquarium and Rainforest Cafe. We had an amazing fourth dimension, and it was a much needed family respite.
In actuality, nosotros did become the phone phone call from my local oncologist on our style to Legoland on Friday. Afterwards getting the news, I immediately got on the phone and left my oncologist in Houston, Dr. Ravi, a message as well as a text to run across how he wants to go forwards. I besides chosen my local pulmonologist to take him personally review the films for his betoken of view. With that said, I have attached the report to this message.
In summary, it was non a slam dunk great report. Beginning and most important, there are no new spots. Equally a side notation, this scan is an of import reminder to be your own advocate, accept charge of your situation, and e'er exist in the know about what's going on. For instance, this current written report remarks upon a "new" spot in my upper right lung. This isn't true. Information technology is not a new spot. Information technology was remarked upon before, and we already knew about it. If we did non know or were for some reason unaware, it would change the clinical course of treatment going forrad.
Unfortunately, both spots grew but as always, isn't and so cut and dry. The one in the lower lobe almost doubled while the upper lobe lesion grew slightly. The peculiar and somewhat promising notion from this scan (besides no new lesions) was the fact that both lesions had very minimal PET uptake. They were 1.1 for the lower lesion and ane.six for the upper lesion based on a scale from 0-15 where 0 is physiologically normal. In layman'southward terms, the lesions do non appear to be very active at all. They could be slow growing, dying, or something else entirely.
Furthermore, I have not coughed upwards claret in almost two weeks which is very reassuring. Virtually may not recollect, merely this is how the entire journeying started for us. I began cough up claret. However, I never stopped coughing up blood until after surgery. I take this equally a very promising notion that something is working, thank you be to God.
Dr. Ravi called me back while we were in Legoland, and my pulmonologist called me back on our trip back dwelling. Mainly, we needed to know Dr. Ravi'south opinion on what treatment, if any, we would do since I still had chemo scheduled for today using the same regimen.
Per Dr. Ravi, since the PET uptake was minimal and the fact I am currently non coughing up blood, he wasn't convinced that the current handling isn't working. He stated an enlarging tumor peculiarly with low uptake on a PET could mean several other things as well tumor progression. Some of these explanations could be an inflammatory change due to tumors dying or as Dr. Ravi described, a bleed over result from this type of tumor. Long story brusk as long equally at that place are no drastic changes in symptoms, he wants to do 2 more rounds (half-dozen weeks total) of this current regimen and re-stage with some other PET scan at that time.
For this reason, nosotros are grateful for this browse. In that location are no new tumors and information technology didn't reveal anything catastrophic. Thanks be to God that we tin can continue on course to eradicate this awful disease once and for all! Thanks for all of your continued prayers! They're working, but they're working on God's fourth dimension frame.
With that said, I am currently getting infused with chemo round seventy. My blood work came dorsum amazing. I attached the report. God simply gave us one direction to move, and that'south forward. No reason to look back. We will win this fight.
We dear yous all. Have a beautiful day.
Source: http://nobodyfightsalone.com/
0 Response to "In This Family Nobody Fights Alone Logo Png"
Post a Comment